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September 2024

Good endo appointment

Saw my endo today.

Honestly, I wasn't happy with my A1C, had gone from 6.6 to 6.8, but he's happy as long as I stay under 7.0.

My time in range was 82% which he says means that 8 times out of 10, I'm made good decisions.

I asked to go up on Mounjaro, but he wants me to stay at the current dose for 60 months.  I'm losing about a pound of week which he is happy with.  I'm not BUT.

He also doesn't want me to come into the office for 6 months.  Once I turn 65, we have to meet every 3 months, but until then (9 weeks).


Good endo appointment

Saw my endo today.

Honestly, I wasn't happy with my A1C, had gone from 6.6 to 6.8, but he's happy as long as I stay under 7.0.

My time in range was 82% which he says means that 8 times out of 10, I'm made good decisions.

I asked to go up on Mounjaro, but he wants me to stay at the current dose for 60 months.  I'm losing about a pound of week which he is happy with.  I'm not BUT.

He also doesn't want me to come into the office for 6 months.  Once I turn 65, we have to meet every 3 months, but until then (9 weeks).


Weight Loss with Mounjaro is interesting

When I lost weight with the Lapband, it was pretty cut and dried.  When I followed the rules, I lost weight.  When I didn't, or couldn't, I didn't.

I'm trying to use the same rules with Moujaro -- eat protein first.  Avoid high carb foods and save them for last.

With Mounjaro, I seem to lose weight when I take a dose, and further days from the dose, I either don't lose or gain, slightly.

The other frustrating part, is that I don't seem to be changing clothing sizes even though I have lost about 20 pounds.  That is the most frustrating part.

 

 


Sleep is driving me crazy

It doesn't help with I read about research that says sleep causes Type 2 diabetes.

I have been dealing with sleep apnea for over 20 years.  Long before being diagnosed with diabetes.  One early theory was that when I broke my jaw in a car accident that caused my sleep apnea.  That means that it was untreated for about 20 years.  My doctor tends to forget that until I want to try something other than CPAP.  Otherwise, it get buried in the chart.

I have been struggling with my CPAP mask for a while.  We've tried several different ones.  The one I have is the best.

The worse part, is that when I have a bad night, it tends to make the next night even worse.  If I am too tired or not tired enough, I wake up a lot, and then the mask ends up off.  

I have been to sleep therapy, with two different people.  The last one had some good tools which I have been using, but she has also belittled the stress in my life.  I know I shouldn't be stressed about the things I stress about but is just how I am.

I've had a bad night just about every night this week.  If I go to sleep at a "reasonable" time, I wake up in the middle of the night.


Omnipod 5 - current techology

As I said in my reintroduction post, I’ve been through a bunch of pumps.

2 different Animas

3 different Medtronics

Omnipod Dash - using both their mode and PDM and looping using my iPhone.

now Omnipod 5

Yes, I’m probably Type 2, maybe with a bunded out panacreas, but I also have a binge eathing disorder.  I haven’t talked about it much, mostly because of the guilt associated it with it.

But I’ve had an A1C under 7:0 most of my diabetic life, and I attribute that to pumping.  There is no medication — except maybe the new GLP-1s that could handle that.

Nothing satisfies what cause me to binge than high carb items.  I try protein but at those quantities, I still needed insulin.

Pumping was the easiest solution.  The key is to get the ratios correct so you aren’t eating to the insulin.  it does result in weight gain.  But binging does.

I went to the Omnipod 5 back in March, even though it wasn’t approved by the FDA —most of my pumps have not been approved for Type 2.  It is approved though as of end of August 2024.  There were two reasons I went to the Omnipod 5 — nighttime lows and fights between the looping developers.  Both my endocrinologist and I more comfortable with an FDA approved solultion.  

I left Medtronic, as I got a pump that was advised to be the first artificial pancreas but they woudn’t give me the model I purchased because I was a Type 2.  Before that, I had an endo who would prescribe off label, but he retired.  He probably would have fough for it.  

I had been hesitant to go to the Omnipod Dash, even though it was approved for Type 2, because I had heard so many issues with the adhesive.  I really haven’t had issues though, and it is actually easier to do the Omnipod than an insertion set.  I have a severa needle phobia and a lot of the insertions sets triggered that.

I am in the process of transitition from the Dexcom G6 to the Dexcom G7 — I had worn that G7 for about a year without issues, but had to go back to the Dexcom G6 when I went to the Omnipod 5.  I’m on my third pod and I do have a Dexcom G6 sensor and transmitter just in case.  The transmitter expires in two week, so there is that.

I did have some issues with the first box and three of the pods had to be replaced.  They weren’t connecting to the system.

I have been able to get Omnipod 5 G6/G7 pods from Amazon Pharmacy. 

I’m using Lyumjev with the Omnipod, which burns the first three or four boluses, but gets better pretty quickly.  I don’t notice it with basal doses.  I had the same issue with Fiasp.  I haven’t noticed any burning with Novolog, but my insurance doesn’t cover it, and I haven’t wanted to go to Humalog.


Anniversary - 22 years in

I was diagnosed with diabetes 22 years ago this month. 

I have gone through 5 primary care doctors. 4 endocrinologists. 7 insulin pump systems, lap band surgery, 3 Glp-1 medications, 2 cardiologists, 3 lap band doctors, an obesity doctor , two many weight loss programs to count and 2 social workers.  4 CGMs systems  

I had a binge eating disorder and sleep apnea before diagnosis.  I still have them. In fact, my sleep is the worst it has been and I have been through 3 rounds of therapy. 

Mounjaro made a huge difference for me.  I saw some good small changes with Victoria and Ozempic and Mounjaro is helping me lose weight. 

Currently I am at the gym  I have been through a bunch of those too   Right now, I am loving LifeTime Fitness and am there now  

i am doing various forms of cardio and weight training   I use Arnold’s “The Pump Club” for that